Words From Jana
Yes, I had brain fog.
I, too, got lost driving to the grocery store.
Yes, I was depressed.
And yes, I also felt so terribly alone.
Yes, I felt worse during a full moon.
I, too, was unable to walk around the block with my dog.
Yes, I also felt scared.
And yes, I also wondered if I would ever feel well again.
You are not Alone.
My Lyme Disease Experience
Misdiagnosed/ Undiagnosed
What can I expect during Lyme treatment?
Symptom-Specific
Encouragement / Mental Wellness
Remission / Recovery
The Battle Within
I wrote this book for you, Lymies! Diving into vulnerability, I bare my soul with the message that you are not alone. Whether you’re a Lyme patient or the caregiver for a Lyme patient, with no sugar-coating I share my experiences so that those unfamiliar with Lyme will see the reality of this nightmarish disease. Hopefully, you’ll find some comfort in knowing that you’re not alone.
“My Lyme disease diagnosis was an answer to a life full of trials and tribulations. Confirmation that I wasn’t just a loser in life.”
United by Lyme
I started United by Lyme in November of 2021. I had already published my memoir, The Battle Within, but I wanted to continue advocating for Lyme Warriors the world over. During my battle, the two months between my doctor appointments were full of fear and mystery. I had so many questions, but I had nowhere to go to find answers. United by Lyme is meant to be that forum, that relief, that warm hug or gentle nudge of encouragement between appointments. It’s a safe haven, a resource, to help you through what may honestly be some of your darkest days. I am here to encourage, support, share and help you to feel a little less alone as you navigate your battle with Lyme disease.
With you in mind, I have included an extensive list of resources. The Resources page is devoted to my favorites…useful tips, creature comforts and recommendations that I found beneficial during my long battle. Some of them are things that I discovered post-treatment, that I wish I had known about while I was still in the midst of my long battle. I hope they are helpful for you.
Most importantly, as you sift through the content of this blog, know that you are not alone. With the right treatment plan, I believe you will reach remission as well.
* I am not a doctor or a researcher. I’m not here to tell you how to cure Lyme disease or advise you on treatment protocols. All I can share with you is my experience. Lyme disease is different for everyone. It is best treated by a Lyme-literate doctor who can put together a comprehensive treatment plan, specific to you.
