November 30, 2021
My Tongue Turned Black!
Why Is My Tongue Black?
I recently shared with you the pain and discomfort of my Bartonella toes. The morning I woke up to discover that my tongue had turned black was equally compelling. While it wasn’t painful or uncomfortable, it really scared me and continues to resonate. Like a giant, flashing red light of fear, when I saw it I was silently screaming, “Why is my tongue black!!??” In fact, this one symptom, that only lasted a few days, was my guiding reason for starting this blog.
In conjuring the circumstances of this striking day I was sure it was months into my journey. This is a testament to how overwhelming Lyme disease treatment can be. Time takes on a whole new meaning when you’re forced to climb a new mountain every day. As it turns out, I was only about three weeks into my two-year-long battle.
Leading up to that day, my memories are a blur of fear, pain and discomfort ranging from moderate to oh-my-god-I-think-I-might-die. I felt like I was walking through an endless dark forest smothered in a fog that never lifted. I felt my way along slowly and trepidatiously, as though half-blind and lame. Within a few short days of starting treatment my body had become a mystery to me.
Have You Woke Up to Discover a Black Tongue?
On the morning of July 7, 2017, I woke up prepared to slog through my day as usual. The aroma of bacon and eggs spurred me out of bed. I slowly shuffled to the bathroom and went through the motions of my morning. Surprisingly, this always included brushing my teeth. Long story short, when I stuck out my tongue to brush it, I was astounded to discover that my tongue had turned black overnight. As I stared back at my reflection in the mirror in utter disbelief, my heart skipped a few beats. I was terrified.
As you can imagine I immediately walked into the kitchen to show my black tongue to my husband. While he did appear perplexed and a little concerned, I was disappointed when his alarm didn’t match my own. I called the doctor’s office as soon as they opened to share my news, passing my concern along to the receptionist. How worried should I be? Is something wrong? What in the world could cause this? Is this a sign that I’m dying? All these questions rattled around in my exhausted and frightened brain. I waited what felt like an eternity until my doctor could get back to me.
While I waited, I chewed on this looming unknown like a bad habit. Fear reverberated in my brain. My attempt to find answers on the internet was to no avail. There was one mention on some forum that I can’t recall the name of, but there was no answer for the cause. I did find some comfort in knowing that at least one other person had experienced something similar but I knew my fears wouldn’t abate until I heard from my doctor.
What Causes Your Tongue to Turn Black?
I’m not sure how long I waited to get that call-back but eventually my phone rang. The nurse on the other end of the line assured me that I wasn’t dying and there was nothing serious wrong with me. My recollection of the conversation is that the likely cause was my antibiotic, which at the time was Doxycycline, causing a fungal overgrowth. She suggested I cut back on how many pills I was taking for a week or so and it should get better. She also recommended I take hot Epsom salt baths to aid in ridding my body of the toxins building up as the bacteria died off. Another resource is taking probiotics, which I was already taking, as prescribed for me by my doctor.
Breathe Easy, You’re Okay
I breathed easier with this information now provided but the scar from that morning, and of that unknown fear, still resonates. If you ever experience this, I hope this post helps alleviate any fear you may feel. However, this shouldn’t serve as a scientific diagnosis. I would recommend you contact your doctor as well to be sure.
Yes the journey to healing and recovering from Lymes is long and arduous. Full of surprises as each medication works differently on each person. My journey took 4 years but now I am in remission. Thank you Jana for having the courage to create this site to encourage others. You are pretty amazing .
Thank you Deborah, you are amazing too!